In 2014, I was interviewed by NBC's Nightly News with a fascinating story of an 8 year old boy in Australia who was diagnosed with a form of epilepsy. As I watched his progress, it became evident that he was suffering from a condition known as 'Sparky Syndrome' which had a strong genetic component. I had never heard of such a term. I had no idea there were children of this particular type, until after the interview aired. This boy has had his seizures for the past 2 years. It was not a fun experience. The seizures have affected his life and he is currently in a wheelchair with seizures that are difficult to control and may require surgery. He has been treated in many ways, including with pharmaceuticals, however none has helped him. I know this is not the place to describe all of the medical issues he has had to go through, but I will share with you the highlights that I had observed during the interview.
1) He had a high fever during the night prior to being interviewed, which has never been seen before. 2) He also had a very high fever the next morning. He said it was the highest he has ever felt.